Author Topic: Needing help setting up some sort of financial vehicle for our son.  (Read 1975 times)

elyay

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A little bit of background. Hubs and I are nearing 40. I emigrated on my own from E Europe in my late teens and over years managed to fund self through two colleges, get green card and eventually citizenship. My parents are "pillow stuffers," and I learned from them to save, but not invest. I managed to get through college by working, credit cards, and scholarships. I wasn't eligible for federal money. Paid off cards, traveled some, sending money home every once in a while. I met my husband a few years ago. He did a lot of crazy stuff, like take money out of 401k to buy a new car, traded cars every few years, withdrew all money from his Roth, bought all the greatest and latest, etc. I am happy to say that his kind of behavior has been curbed, and he's on board with me about saving, not getting newest stuff, not touching his 401k etc. He's not the greatest source of financial advice and I'm scared to invest and reading fine print gives me headaches. So, here I am. We may be late to become rich but we can help our kiddo. 
Soooo.....
We have a special needs 3 yo kid who's autistic, but not "special enough" for medicaid, and we're not poor enough for SSI. We're making a few thousand under 6 figures in an expensive city in NW. Our necks are barely over water. Both hubs and I have matched 401 (k)s, emergency savings, probably about 1.5mo worth, and we pay off our one CC in full monthly (for airline points because I visit family in E Europe every 1-2y, now with kiddo). We own our place, got it for just under 200K. We considered opening a Roth IRA, but with all the bills for our kid's therapies, we're hurting. Luckily all of the therapies are on a no-interest payment plan, but they net close to $400/mo, that's with med. insurance. We just started these in March. Luckily, hub's car should be paid off in March.
So here's the question. We want to put down some $ for our kid. I don't know if he'll go to college or vo-tech or anything at all. I have no idea what will his disability look like in 15 years. We can't put away much right now, maybe $50/mo, but we may be able to afford to put away $100/mo in March. I am not sure if a 529 is a best option or a Roth? What's the best option for us to grow some $ for our kiddo? I'd like something that he can either take over if he overcomes his disability, OR something that we can keep under our control depending on what happens... hopefully that can be the same investment vehicle. Someone mentioned whole life insurance but there are so many options! Fine print! Eek!

I appreciate any help. Be bold. I don't get offended easily. We need serious help and are afraid of getting scammed by a life insurance agent. Please help.

GizmoTX

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Re: Needing help setting up some sort of financial vehicle for our son.
« Reply #1 on: November 20, 2015, 09:30:20 PM »
Look into second-to-die term life insurance. It's less expensive than conventional term because the cost is based on both your life expectancies. Depending on how your child turns out in 15 years, you could have it pay either to him or in a testamentary trust for him.

pbkmaine

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Re: Needing help setting up some sort of financial vehicle for our son.
« Reply #2 on: November 20, 2015, 09:38:58 PM »
Have you thought about moving to a place where more of the therapies are covered? Our 7-year-old granddaughter tested on the autism spectrum when she was smaller and got all kinds of help from the state of New Jersey. Early intervention was so effective for her that she is now completely mainstreamed. She still has some issues around rigidity with food, but she has come a very long way. When we lived there, we also had neighbors who had moved to NJ from North Carolina simply because the early intervention is so good in NJ.


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mxt0133

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Re: Needing help setting up some sort of financial vehicle for our son.
« Reply #3 on: November 20, 2015, 10:19:27 PM »
 +1 on what pbkmaine suggest, but you might not have to move all the way to NJ to get assistance.  Even if you did, living in NJ might not be worth it, I know I lived there =).  Seriously, the evaluations could be vary widely and his condition might change as he gets older, I would keep getting him evaluated if you feel that he will not be able to support himself when he's older of if he's getting worse.

As for financial vehicles for disabled children, look into special needs trusts, which you can fund to cover his future expenses after you and your husband pass.  A estate planner should be able to help you with the details.