Author Topic: Investments for long-term-care of children with developmental disabilities  (Read 1100 times)

gwhunter

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I work in the area of Autism as a service provider for young children.  Yesterday I was facilitating a support-group for parents of children with developmental disabilities.  At the end of the meeting when we got to the time for asking "what would you like to learn more about and/or meeting topics and ideas for the next meeting" one of the parents brought up the struggle of knowing how to invest/save for their child to be supported after the parent is no longer around. 

While I'm not sure how to answer these questions because I'm not in that situation and haven't looked very much further than VTSAX and chill and the investment order strategies, I would like to offer a potentially mustachian list of resources for these parents.  One parent in particular mentioned discussing this with her financial advisor and the advisor having no clue what to do.  So I guess what I'm looking for is to see if anyone has any general recommendations on locating resources/websites/books/advisors that contain more detailed information about how to setup investment vehicles for the long-term care of children with disabilities.  I'm looking less for "make sure you have x plan" or "make sure you have Y type of trust" and more of a resource that I could pass along to the parents in this support-group who are looking for answers to questions they didn't even know they would have until they had a child with a disability.   

SwordGuy

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davisgang90

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I posted on the thread Swordguy linked to above. We have a 23 year old son with autism. We've been through SSI, Medicaid, Able accounts and Special Needs Trusts.

Happy to discuss either in this thread or via PM.

gwhunter

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I posted on the thread Swordguy linked to above. We have a 23 year old son with autism. We've been through SSI, Medicaid, Able accounts and Special Needs Trusts.

Happy to discuss either in this thread or via PM.

Thank you davisgang!  I'm not super active on the forum, but I will reach out when I get a minute.  I really appreciate the offer. 

Morning Glory

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Thank you SwordGuy and davisgang for bumping that thread!!! I've got two little guys with autism and I'm just learning about all this stuff, however it's tricky because at this point we just don't know if they will have needs into adulthood or if they will be totally independent. The autism spectrum is so diverse!! Even these two are totally different from one another.

The one piece of concrete information I can add is that up to 15k per year can be rolled from a 529 to an ABLE account without tax or penalty. I am in a high-tax state and for now I am continuing to contribute to 529's up to the state tax deduction limit with knowledge that the money can be used to help my children whether or not they are able to go to college.

The rest of my strategy for now is VTSAX and chill lol.   My fire plan is quite flexible and I can easily pick up some part-time work in my field if more money is needed.  I still need to get on will-making but my brother has verbally agreed to be a guardian if my spouse and I both die. Once they are teenagers I will have better information about whether they will be able to manage money on their own as adults, so I'm going to wait before setting up any kind of trust.

ltt

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Re: Investments for long-term-care of children with developmental disabilities
« Reply #6 on: November 07, 2021, 12:48:40 PM »
During one of the support group meetings, it would be beneficial to have an attorney who specializes in SNT come in and talk with the parents.