I’m close with someone from the US who has a rare medical condition requiring daily pills, and has spent lots of the last 20 years happily travelling despite that. Here are my observations:
--Figure out exactly what you need from your US healthcare provider, what you need from the worldwide providers—and how that fits with your general travel plan. For example, if your condition is stable, you see your doc once a year, and you take medication that can tolerate a temperature range, then maybe come back to the US annually, and get a 12 month meds supply. It may take some time get the over ride amount approved, but my friend never gets turned down.
--Talk with your doctor, especially if you need to be seen by a specialist outside the US. Your doc may know, or will be able to easily research, specialists in other countries.
--Talk with your pharmacist about availability of your medication in other countries.
--Call the company that makes your medication and ask if you will be able to purchase it in your destination country. (my friend says this used to be easier to do before big US pharma got so worried about medication purchase arbitrage, but it’s still possible)
--Talk with a travel insurer. My friend uses World Nomads, and they’ve been helpful confirming the availability of his meds. in various countries around the world.
--Think about how other illnesses might impact your condition. It’s pretty common for travelers to get COBE sick sometimes. (COBE: coming out both ends) What happens if you’re so sick for three days that you can’t keep anything down. How will that impact your chronic condition?
--Think about drug interactions. Malaria medications? Full spectrum antibiotics? Will you be able to take these while taking your regular meds?
Despite the seeming gloom and doom of some of the above, my friend’s experience of round the world medication has always seemed pretty positive. I was there in Ulaan Bataar Mongolia, for example, where an amazing pharmacist spent more than half an hour with us translating from English to Mongolian to Russian (where their meds come from) to make sure that she got things absolutely right. And the time in Kashgar, China, when a pharmacist didn’t carry my friend’s meds, but used her own phone to make more than eight calls to find out where he could get what he needed.
So maybe treat this as another interesting challenge of your travel? Good luck!