Author Topic: Wife (47 yo) had multiple strokes - Holy Shiznit!  (Read 3667 times)

I'm Fred

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Wife (47 yo) had multiple strokes - Holy Shiznit!
« on: October 17, 2019, 02:55:26 PM »
I'm watching the morning news and my wife, who as far as I know is still sleeping, calls me on my cell phone.  She asks if I can come upstairs.  Ok weird.  I go up and she's sitting on the edge of the bed and says her left leg and arm don't work. 

Short version:  she woke up, tried to walk to the bathroom and face-planted.  Thought, that's odd, so she tried to crawl to the bathroom (really had to pee).  Her left arm didn't work either, so she face planted again.  She tried to stand up again and fell into the wall.

The two of us utilized our (lack of) medical expertise to decide to walk it off, maybe take some Advil, rub some dirt on it. In retrospect calling 911 would've been the best choice, but with no stroke history in either family we were in denial.  Really, who has a stoke when they're 47?  Her arm recovered pretty quickly and her leg was getting better.  After about 40 minutes of looking up stroke symptoms we drove to the ER where a CT scan confirmed multiple small strokes.   She had another stroke the next day in the hospital when her left arm dropped and her face drooped on the left side.  That one only lasted about 10 minutes. 

That was two weeks ago.  After every test under the sun they can't find anything specific that would have caused it.  She's on some meds.  Has no speech issues and is walking around ok.  Still has spacial awareness problems with the left side and bumps into things with her left foot and arm, but is otherwise ok.

Anyone been through this before?


Chrissy

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #1 on: October 17, 2019, 04:22:24 PM »
Kinda.  I had a friend in his 30s who woke up and couldn't speak properly.  Fortunately, he was visiting his mom, who is a nurse.  She took him to the ER where they discovered he'd had a serious stroke... due to unknown/untreated sleep apnea.  He made a pretty great recovery.

I'm sorry this happened to you guys, and I hope they figure it out.

BikeFanatic

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #2 on: October 17, 2019, 04:40:29 PM »
Multiple small strokes sounds like blood clots, embolism. I s this a big hospital where they can work up things? I s it a stroke center? Teddy Bruski of the patriot had a stroke at 40 due to a hole in his heart never discovered on any physical, and you can bet football players have tons of exams. They should do an echo cardiogram to see the possible PFO, or look for clots in the Left atrium. Seems like she is on the mend is she on a anticlotting med? Take care, this is tough.
B

I'm Fred

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #3 on: October 17, 2019, 04:56:53 PM »
Thanks for the responses.  Yes, it's a large and well equipped hospital.  She's had: 3 ct scans - one with contrast, MRI, shit ton of blood work, echo cardiogram from the front and also from the esophagus side, sonogram of extremities looking for clots.  She's wearing a heart monitor (EKG) for the next month looking for any random AFib that may lead to clotting.  Everything is good which is good, but leaves the hanging mystery of what caused it.

She's doing well although she's thoroughly bored at home and wants to go back to work.  Type A all the way.  I retired today and will be able to drive Ms Daisy around until she's back to normal. Yay FI!

BikeFanatic

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #4 on: October 17, 2019, 05:04:12 PM »
So glad she is doing well. Take good care of her, sounds like you are!

yakamashii

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #5 on: October 17, 2019, 06:15:14 PM »
This happened to a girl I was dating when we were both 18. Very scary stuff. Lots of tests and head-scratching before they eventually figured out she had lupus. Hope that's not the case for your wife.

Cannot Wait!

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #6 on: October 17, 2019, 07:30:28 PM »
Congrats on FIRE-ing!!!

Sorry you got thrown such a curve ball.

Sandi_k

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #7 on: October 17, 2019, 10:36:38 PM »
Does she have degeneration in her neck? My mom had a series of small strokes after she got her hair done. The culprit was apparently the ledge of the sink, where she hyper-extended her neck against it.

She now uses a rolled-up towel when shampooing her hair at the salon. No crinking of the neck backwards.

havregryn

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #8 on: October 17, 2019, 11:09:16 PM »
I had a stroke in 2015. I was 32. We were getting ready to go meet friends for a playdate with our toddlers and as I was about to put on my jacket, I felt the weirdest sensation of my right arm just somehow disappearing. I turned around to tell my husband that something weird happened and then realised I could not speak. That made me realize I was having a stroke.He realized something was wrong, panicked, asked me if I was having a heart attack. I was able to use my working arm to point to the head. By that point also some slurred speech was possible so I could tell him to call an ambulance.By the time the ambulance arrived my symptoms disappeared and they were rather skeptical because a stroke is not the most likely explanation at that age. But they took me to the hospital anyway where an MRI confirmed a stroke.Long story short, it has been 4 years now and no cause could ever be identified. Not for the lack of trying, they've tested me for every super rare thing the neurologist could think of over these past few years.
However, I am sure your doctors will tell you as they told me (f they don't, searching pubmed can), as scary as it is, not being able to find a cause actualy gives you the best prognosis, especially when you are young (and 47 is also young for stroke statistics).The subgroup of stroke victims with no known cause has best survival and recovery statistics.
Sometimes now when I raise this issue with some random doctors they're rather dissmissive (as in, you're alive 4 years later, it barely counts) and I always feel mildly annoyed, but also a little bit relieved because as annoying as it bloody is to have a doctor dissmiss such a massive traumatic health event, it also feels better than being met with horror and fear that you will die in front of them if they do something wrong (which was very common when I got pregnant in 2016).
I'm sorry this happened, from my experience I would say don't underestimate the psychological toll this will take when it sinks in and consider getting psychotherapy as soon as possible. I first wanted to be all "now I will know to appreciate life" but it developed differently, I became very anxious and depressed and had clear PTSD signs from it. Don't read too much on google, there is way too much shit that will scare you out there, you need to really understand statistics and epidemiology if you want to read that stuff (I used to work in this field and I understand all those things but it is still difficult to think rationally about it all when depression and anxiety kick in).

Just remember, not finding a cause is not a bad outcome in terms of prognosis.
Good that you are FIRE...to be honest the biggest concrete influence any of this now has on my life is, well, goodbye private medical/life insurance. But we were also financially super responsible way before this happened and we can manage to face any future without insuring me extra over what is state provided (we're in Europe so there is less weird stuff about healthcare around here, thank God).

accolay

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #9 on: October 18, 2019, 02:11:00 AM »
Pretty scary. Sorry you're going through this, but luckily you went in and had it checked out- you'd be surprised how many people experience this that go on with life after the symptoms subside (probably something to say about the expense of the US health care system here.)

When people are younger and experience stroke signs and symptoms, even medical professionals will deny the possibility because "they're too young." Heard an anecdote about a kid in a rural hospital who had classic stroke signs and symptoms, but the MDs there thought it had to be something else and they sat on this kid for hours and hours not transferring them out to a larger hospital for a full work up because it couldn't possibly be a stroke.

Samuel

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #10 on: October 18, 2019, 10:55:39 AM »
A friend of mine had a super scary stroke at age 21. They eventually attributed it to her birth control. It really can happen to anyone.

I recommend everyone get some first aid training. In an emergency it really helps to have some training to fall back on. The Red Cross First Aid/CPR/AED classes are cheap and readily available. 

For strokes you're taught the FAST acronym:
Face - Is there weakness or asymmetry in the face?
Arms - Can they raise both arms together?
Speech - Can you understand their speech?
Time - If the above symptoms are present act quickly. The quicker the treatment, the better the odds for a good recovery.

I retired today and will be able to drive Ms Daisy around until she's back to normal. Yay FI!
Amen.

Glad your wife is doing well.

CowboyAndIndian

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #11 on: October 18, 2019, 11:12:07 AM »
She's doing well although she's thoroughly bored at home and wants to go back to work.  Type A all the way.  I retired today and will be able to drive Ms Daisy around until she's back to normal. Yay FI!

Fred and "Daisy". Hope the recovery is fast and brings you back to normal.

I'm Fred

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #12 on: October 18, 2019, 11:12:44 AM »
BikeFanatic - Thanks!
yakamashii -No Lupus, just a bit of loopy
Cannot Wait! - Thank you.  For my first day of retirement I woke up at 5am.  I think I'm doing it wrong.
Sandi_k - Not aware of any.  What an odd cause, though. 
havregryn - Thank you for sharing that especially the PTSD part.  Fortunately both her sister and a friend suggested that to her already, well maybe less of a suggestion and more of a declaration.  Her insurance is great.  I think we've paid about $200 so far.
accolay - That doesn't surprise me.  I think women having heart attacks are probably dismissed in a similar fashion
Samuel -- Thanks. We were reading that on our phones
CowboyAndIndian - thank you

ctuser1

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #13 on: October 18, 2019, 11:16:53 AM »
Glad your wife is doing okay.

I once faced scary symptoms similar to stroke when I was quite young - 26 (?). Maybe a year this way or that.

It turned out to be severe vertigo that can often have symptoms that are similar to a stroke. So in the end I was okay (except for being very very sick for a few days). But I remember just how scared for the 3 hours or so till the ER doctor told me I have nothing to worry about.

Imma

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #14 on: October 18, 2019, 11:30:57 AM »
I had several small ischemic strokes when I was half your wife's age. No clear cause was ever found, although around the same time I had a serious viral infection and some correlation is likely, but we will never know which one was the chicken and which one was the egg, and how exactly one thing led to the other.

I was admitted to hospital with extremely high fever and looking yellow and I also was confused and suffered crushing headaches. Because of the massive fever I was immediately taken seriously and went through every test they could think of. The brain MRI that revealed the strokes was a big surprise as I didn't have any of the classic symptoms. They only did it because my head was hurting so much but they fully expected the confusion and headaches to be side effects of the fever. Because of my age and my symptoms I was a really interesting case study so I saw a ton of doctors and even the biggest expert in the country.

I recovered pretty quickly and have few lasting issues. I feel like I have more difficulty expressing myself verbally but as I only started noticing that while in recovery that's officially not due to the strokes. I even have life insurance, I got it through a broker who is specialized in finding insurance for people with medical issues. The €800 fee was worth the peace of mind. It's a bit more expensive but not excessive. My doctor wrote a statement saying I made a full recovery and statistically I'm not more likely than anyone else to get another stroke. I did not have any psychological side effects, but I was warned that many people who suffer from strokes suffer from depression later on. I hope your wife will not be one of them.

Glad to hear your wife is ok and that you're FIREd now. I had some FU money when I got ill and used most of it. I wanted to FIRE already but now I want it even more. I am much more aware than most people in their 20s that life is not eternal and you may not even reach conventional retirement age.

TrMama

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #15 on: October 18, 2019, 12:26:01 PM »
So sorry to hear about your wife's health. Hopefully she'll make a full recovery and will drive you crazy from her boredom in the meantime.

I know of two people who had strokes young. One was a 30-something friend who had an undiagnosed heart defect. He seemed to recover fully (we met on a sports team) but was unable to work because his job was incompatible with the long term blood thinners he needed.

The other was my cousin's 40-something boyfriend. I don't think they ever found a cause and he's an otherwise healthy guy who climbs mountains for fun. He woke up one night and told her to call 911 because he was having a stroke. The ER didn't believe him and sent him home where he had another one.

Cavechild

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #16 on: October 18, 2019, 03:07:37 PM »
I see she had CT's and MRI.  Since both incidents were left side symptoms, that indicated it was a right brain stroke.  Did they do an3D  angiogram?  Or are the just using CT's to eliminate vessel narrowing?

Adam Zapple

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #17 on: October 18, 2019, 03:09:21 PM »
I have two co-workers who've had strokes.  One in his 50s while he was at work.  Other was in his 40s.  The one in his 40s had a long recovery with loss of feeling in one arm that took almost a year to get back.  He recovered about 90% but everyone notices a change in his personality... he is a bit more dull(for lack of a better word) but you would have to know him before to notice it.  He now deals with a lot of headaches.  The guy in his 50s made a full recovery and was back to work quickly.  Feels good as new.

SunnyDays

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #18 on: October 18, 2019, 06:13:41 PM »
I also know someone who had a stroke in her 20s due to clots from birth control pills.  Guess it's not that rare.

LearnTo

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #19 on: October 18, 2019, 06:20:03 PM »
Glad she's OK - I assume they've checked the usual blood work for clotting disorders?
This is purely anecdotal:  I had a friend in her 40s with a stroke.  They were puzzled b/c she was very healthy and the workup was all negative.  So then they sent off some more esoteric blood tests and she was positive for a rare mutation.  Fortunately the stroke was small and she has no residual damage.  The additional labs they tested were:
PAI-1 mutation
MTHFR 1298 mutation.

(I don't know which of those was positive.)

LateToTheParty

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Re: Wife (47 yo) had multiple strokes - Holy Shiznit!
« Reply #20 on: October 19, 2019, 08:06:32 PM »
Hi. Hope things are still going well. Scary stuff.  And yes, definitely strokes can happen to people of all ages.
Sometimes after these events with left side of body affected, a person can have some subtle visual perceptual and problem-solving deficits that become more apparent with re-integration of life.
I hope that they have recommended physical and occupational therapy in the outpatient environment if you are noticing any of these subtle symptoms.
Sending healing vibes.

 

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