Sorry if this is not appropriate.
Why travel in these circumstances. If I was in your shoes and I know I will be uncomfortable in foreign place and have many limitations I would think hard before going around the world.
That said, I think cruise trip might be a good option to consider.
[Note that the following is said with zero defensiveness or hostility, I get these kinds of questions all the time, and I'm a healthcare professional who primarily works with people with severe chronic health issues, so I'm very used to addressing this.]
Lol,
NO it is not an appropriate question to ask a severely disabled person why they are bothering trying to live a full and interesting life.
But I do completely understand why you are asking, I would just take this as a teachable moment to learn how to engage with a disabled person when you are curious about their lifestyle choices.
The ableist problem with your statement is that you say "if I was in your shoes," but you cannot fathom what it's like to be in my shoes.
You're absolutely right, it's incredibly difficult to take trips with my extremely limiting combination of problems, and I've only mentioned 2, there are several more, they're just not relevant to destination choice, so I haven't mentioned them. Like, the 24/7 migraine will be here no matter where I am and no matter what the roads and food are like.
So, no, I don't take many trips to foreign countries, which is why I haven't seen much of the world because by the time I worked enough to be able to afford travel, my body fell apart, then the pandemic happened, then my body fell apart more, then I had multiple surgeries on unpredictable schedules, and I went back to school, and life just has never made international travel possible for me, despite the fact that I've ALWAYS wanted to travel.
So now, after growing up poor, after working myself to death in university for 11 years, then working my ass off to pay off massive student debt and being self-employed so I really couldn't afford much time off, then losing my career to disability, then retraining for a whole new career, I'm FINALLY, in my fucking 40s able to just choose to take time and take a trip if I want to.
And it happens to be our 10 year anniversary, and we've spent 10 years delaying the big European honeymoon that we never got to take. We did a road trip and rented a cottage instead because I was too exhausted working long hours at the time to handle long haul travel.
AND we now have thousands of dollars in points that are really wasted if we try and cash them out on anything other than travel.
AND the world is a massive place filled with countless amazing destinations, which is why I'm asking a huge group of well traveled people what destination might best suit me to accommodate my particular limitations and preferences, because I refuse to believe that there isn't somewhere that is worth traveling to.
Because I don't define myself by what I can't do, I just accommodate what I can. And that is what I mean when I say that you have no idea what it's like to live in my shoes. Everyone has limitations and we all have to accomodate them, my limitations just happen to be physical.
But it's my job to be creative about the best way to maximize my life experience with the capacities I
do have. Which is a lot like living a frugal life. To be frugal, we all have to do a lot more research about options and think more creatively beyond what everyone else does. Living disabled is
exactly the same thing.
I actually adventure travel much more than the average person, contrary to what my earlier paragraphs in this post imply. I just don't take a lot of international vacations. But I've worked with my capacities and resources to build quite a life of travel adventure.
I've mentioned multiple times that I don't really feel like prioritizing ocean and nature because that's where I live. Well, I live here because I wanted travel adventure and this was the most accommodating way to do so.
Where I am is an international bucket-list destination that people wait their entire lives to explore because it's best to spend at least a month here. I have a friend who comes every year for 2-3 weeks, and her list of places to explore is still massive. It will be years before she's at a point where she runs out of "must see" places on this island.
It had always been my dream to travel here, but when I lost my ability to walk and found out that I needed multiple surgeries with years long recovery timelines, investing in a months-long trip didn't feel like a great value with how incredibly limited I was.
But buying a house here so that I would have an absolutely mild-melting place to recover sure sounded like a nice plan. And because we have a home base here, even if I'm in rough shape, it's not some huge investment to take a long weekend trip to places that before I would have to fly to get to.
We still have our mainland home, which is about 1500 mi away, so we also explore tons of Canada between the two locations each time we do the drive back and forth. So we actually travel a TON and see so much of the country that most people will never see.
We're very avid explorers.
And that's enough for us 90% of the time. But it's been a decade that we've been wanting to take a trip off the continent. And now we have all these points, and I FINALLY have the time and ability to do so.
So no, I'm not going to let the fact that it's very inconvenient stop me. I won't generally choose to take trips, and I probably wouldn't if I didn't have the points to do so, but I simply refuse to believe that there's nowhere worth going for a few weeks.
That said, I can't see us taking many 2-3 week, expensive, long haul flight vacations, because they really aren't a great value for me with my limitations. So as I mentioned in a previous post, the goal is to repeat what we did here. Once DH retires, we plan to move to Europe and have a home base from which travel around Europe will be much, much easier.
Since we absolutely love travel and exploring, and by that point, we'll pretty much have exhausted this chunk of north America for new and exciting places to go, we'll be looking for another home base to explore around.
In summary, I completely understand your question, but no, it is not at all appropriate to suggest that it's not worth it for a disabled person to put in the effort it takes to live a full life despite their limitations.
I fully encourage you to be
curious about why a disabled person makes the choices they do, especially if they don't seem to make sense from your personal perspective. But have the humility to understand that your perspective isn't relevant to mine. We live completely different realities.
You absolutely do not know what it's like to live in my shoes, to put in astronomical effort to not let my life feel like it's getting smaller with every physical ability I lose. I absolutely refuse to live a less adventurous life than I've always wanted, and the world is such a rich and diverse place that I will always assume that there's a place for me in it.
In fact,
because I've lost so much function and ability to enjoy a lot of what other people can enjoy in the world, that makes it
so much more important to expand my experiences in terms of things can bring me joy. So the more disabled I become, the more adventure travel becomes critical for me to feel like my life is full and rich, because I can't enjoy what's on offer locally as much as I used to be able to.
I literally spend my days helping chronically ill people think more expansively about life and not just curl into themselves focusing on what they can no longer do because they're drowning in the ableism that they had when they were able-bodied. They need to completely alter their sense of self and place in the world.
Again, it's just like frugality. The default of the spendy consumerist is to believe that you need to spend more to enjoy life more, and that spending less means a life of self-deprivation, but that's not true. It's the same with disability. The able-bodied person believes that losing physical ability fundamentally makes life worse, but it doesn't, it just means you have to be more creative about how to make life better with the resources you have.
My life has actually been filled with much
more travel adventure since I became severely disabled because I prioritize it more and I've engineered my entire life around being able to. Hell, my dog has seen more UNESCO sites in the past few years than many people will in their lifetime.
Thank you for attending my Ted Talk on being curious about people with physical limitations