@CrustyBadger I pay into social security, so I think so? Very good point about the SSDI - I definitely want to keep that in my back pocket, as it looks to pay better than just disability. Is that something I could get in addition to "normal" disability or instead of?
Also
@lhamo the student loan is Navient. Boo. :-/
haha...I wasn't very specific, but I am the lucky owner or TWO non-curable diseases that would actually qualify me for SSDI. I should really get double the money, right? The cause of both? UNKNOWN. GENETIC LOTTO, BABY.
My doctors say they aren't linked. And man, I used to work out like crazy. No one else in my family has any of them.
And they're both pretty invisible. One will remain that way because it can be managed, and the other may rear its ugly head. Doctors HAVE made a lot of advancements, though, and I told them to attack them with any medicines they can (one has medicines that can kind of keep it at bay, maybe, but that's all).
Right now, I can still run (but I hate running) and exercise and mostly do all the stuff I normally do, and most of my friends don't even know I'm sick. I keep it very secret, and I don't want to lose my job over people finding out. Some people will do anything to get rid of a disabled person. It's pretty gross. If I relapse, I just have to figure out an excuse to disappear for a couple weeks while they fix me, and then I go back to pretending to be normal. Yay! I mean, I hope. So far it's worked that way.
The scary part right now is honestly the money. My drugs is ridiculously expensive. I'm getting GOOD at hospital stays. I can give myself shots literally better than a nurse. I just...wish I didn't have to be scared about money. I wish disabled people weren't always expected to live on the cusp of bankruptcy.
@lhamo, what you posted about medicare makes me feel relieved. I was always so scared it wouldn't be up to snuff with my current insurance and then they'd make me go on a sub-par med.
And
@snacky thank you - I am a bit of a control freak so I tend to obsess about what I CAN control.
I really, really appreciate all the insight. I am saving this all up. :)